Tuesday, September 2, 2008

What have we become?

I had a disheartening experience over the weekend. I’m sitting here at work, struggling to stay composed, because I feel so very disillusioned with people in general.

On Saturday I took Stephen with me to do some errands, which for the most part usually turns out well. We went to the first stop, Sam’s Warehouse Club, (which I had prepared him for with some pictures before we left home) but he balked at going into the store. I stood inside, calling for him to come in, and finally he walked just inside the automatic doors. There was a scramble for shopping carts – it was chaotic and loud, and eventually I had to elbow my way in just to get my mitts on a cart. Another lady had squeaked around me and gotten her cart, and as I was turning to get Stephen, I heard her say, “Move. MOVE!” in a rude and insistent way. In slow motion I looked to see that she was talking to Stephen, and he stood there resolutely, fingers in his ears and planted in one spot. I put my hand on her shoulder, turned her toward me, and said, “Hey! He has autism!”

“How was I supposed to know that?” she fired back, and pushed her cart into the store.

I was seething. Another lady who had seen this interaction came over to me as I was struggling to lift Stephen into the cart. Usually I can manage but I was shaking and emotional. This lady helped me get Stephen settled as I muttered about “idiots” and “people who make stupid assumptions.” She looked at me kindly and said, “Yes, they sure do.”

Tears still flowing, I pushed Stephen into the store, and then I stopped. Was I going to just let this go? No. I think not. I began to look for the woman who had acted so harshly toward my child. Up and down the aisles we went, incoherent thoughts bubbling through my head. I’m sure I looked unhinged. Finally I spotted her, and, my heart pounding, I approached her. To my best recollection, it went something like this:

“Ma’am?”

She turned to look at me, recognizing me at once.

“You said you didn’t know my son had autism…well, let me tell you that you can’t go around making assumptions about children…how can you DO that?” I was crying full force already.

She looked around nervously and said, “Yes, well…I admit I thought he was just another errant child…”

A solid thought formed and hit me like a ton of bricks. “You know what?” I said, “Even if you had no idea he had autism, how dare you talk to a CHILD like that? Any child?”

“Well…umm…”

“And ma’am? I am having a HARD time with him this morning, and people like YOU don’t make things any easier! You have NO idea what this is like!” More tears, and in my peripheral vision I can see other people listening to me as they pretend to shop for 50 gallon drums of mayo or whatever. She ducked her head and muttered something, then she looked at me. I’m sure I made a great impression – dressed in my Saturday running shorts and T-shirt, ball cap on my head, and tears running down my face. She said, “I’m sorry. I feel the pain you’re feeling.”

I said, “Please, don’t ever assume that a child who seems to be badly behaved is only that…at least till you step back and take a look at the situation,” and Stephen and I went on our way.

The lady who had helped me when we first entered the store walked up – she had been there the whole time. She patted me on the shoulder and said, “Good for you, hon” and walked away.

The rest of the shopping excursion went pretty well, but I was shaken. When we got back to the car I had to sit there for a few minutes before I could drive. The most painful part of this whole experience was the sheer SPEED at which this woman made her assumptions and acted on them. Put the autism factor aside…the fact that an adult would so quickly turn on a child for (gasp!) being in the way of her shopping cart quite frankly broke my heart. This isn’t an isolated incident, either – we’ve all been the recipient of quick anger, have we not? I’m not sure how long ago the phrase “road rage” was coined, but it’s that kind of thing that happens ever more frequently in this culture of ours that frightens me and shakes the very core of my being.

As fate would have it, I’m in the midst of a re-read of the “Mitford” series by Jan Karon. These books are rare in that they have strong religious themes, but so gently and beautifully woven into the story that they comfort me rather than irritate me. If you’ve read them, you know that the little town of Mitford is a Mayberry for the 21st century – in short, the community interacts, cares for, loves, and laughs with each other. I get caught up in that dream when reading – it all seems so RIGHT, and so possible. Do the right thing because it’s the right thing to do. Care for others and they will care for you. Live! Enjoy nature. Enjoy food and wine and poetry and music. That lovely song was still playing in my head when Stephen and I drove up to Sam’s Club on Saturday. The volume went down a bit when he was cranky, but it was playing in the background nonetheless. When the INCIDENT happened, the phonograph needle screeched across the album, and then there was silence, cold and uncaring.

I am heartbroken at the seeming lack of real community. I have searched for it for so long and cannot find it, not in a real, tangible way. I want neighbors who drop by for coffee. I want people who offer help when needed, and who ask for help in return. I want people who KNOW me, who care and know about my life, and whose lives I can know and participate in. I want to stretch, to grow, to learn. I have listened to others decry the age of technology, of instant gratification, of social isolation – and now, I understand. While the computer I use to type these very words is a part of the progress that has certainly benefitted us, what have we given up as payment for these conveniences? We have a million channels on TV, and such a scarcity of quality programming that it makes me sick. Remember when there were four channels, and if nothing was on, we turned it OFF? Remember when you read the newspaper or waited for Walter Cronkite to tell you the news? Now it’s on 24/7, and there’s a struggle to fill every minute with something, whether newsworthy or not.

I know what you're thinking. I sound like one of the old people I used to listen to as they waxed poetic about golden days…and I’m sure that my ten year old son would roll his eyes just as I’m sure I did at his age. Maybe this realization comes only with age. Maybe it takes living a while to figure out what’s really important, I don’t know. I only know that I’m tired of feeling that I live in a glass box. I’ve tried to reach out and more often than not my efforts fall flat. Today I feel like it’s always going to be this way…that my little family might as well be on a desert island. Yes, we have each other, but everyone needs more than that...

In my heart, though, I know myself well enough to know that I can’t give up, not really. I feel that I have a whole world inside me, just waiting for the right people to come along, who recognize a kindred spirit and who want the same things that I want, that my family wants. Until then, I will just keep hoping.

And probably complaining…

3 comments:

Just Me'n Mine said...

Michelle, I stumbled upon your blog and I just felt compelled to tell you I'm sorry. No, not sorry as if I had anything to do with what you experienced, but...just sorry you had to deal with that. Your son has Autism. Mine has "Autistic Spectrum Disorder" or Pervasive Developmental Delay- Not otherwise specified, so "they" say. Its weird. In many if not most ways, he just seems like a typical kid. But, he is not. He has struggled with Sensory Integration Disorder and he doesn't deal with unexpected changes very well. Occupational Therapy has been HUGELY beneficial for him and he has come a long way from the terrified little boy who grabbed his ears and cried at every loud noise he encountered and panicked in unfamiliar surroundings.

I don't know why I am telling you all this accept to say that I have shared some of your pain and frustration. My heart hurts with you, and as I read your account of your interaction with that woman, my heart pounded in my ears as I pictured the scene.

My hope is that maybe this woman went away from that encounter with something worthwhile. Maybe the awareness that she should slow down and actually notice the people around her, maybe a grief over her own callous behavior. Perhaps it will lead to a repentance for her.

I guess Birmingham is not Mitford is it?

Well, one thing I can see; your son is blessed to have you for his Momma.

Sincerely,
Leisl Lemire

Jen said...

OMG!! I can't believe that woman -- I would've b*tched-slapped her (well not really, but it would have been REALLY HARD to fight the urge!)
I hate how people can be so rude. We were at Outback a few nights ago, and Devonne was doing her usual LOUD humming and babbling, and food/menu/cup/toy(basically anything within her reach) throwing, and people were looking at us like "wth is wrong with that kid, why don't they shut her up?" I over heard this Hag in the booth behind me say, "Isn't it awfully late to have children out?" I *wanted* to turn around and give her an earful, but I told myself she wasn't worth ruining our dinner...
It sucks that us Autistic parents have to show so much restraint and composure. I mean for me, taking Devonne out in Public is DAUNTING enough, I don't need the added stess of rude uninformed people.
ANyway, sorry for rambling on, I really came here to let you know I replied to your thread on the AL board. I found a site I think could be useful.

Empress of the Hidden Face said...

I am reading these comments for the first time - not sure how I missed them, but thank you both for your support and thoughts.

Please stop by anytime. :-)