Wednesday, December 5, 2012

Watch this space...

After a lengthy absence, I have plans in the works for updating my blog.  In part, I will be adding a section that highlights autism "tools" that I've found or created to help Stephen with certain situations over the years.

I'm still trying to cook good food, at least insofar as my budget allows, so there will probably be some foodie stuff sprinkled around too...

I'm posting this simply to try to spur myself on - both my husband and my very dear friend M have encouraged me to share some of my "inspirations" for trying to help my baby boy navigate a world that must so often seem foreign to him.  So, I will.  Maybe something I've done will help someone else who's struggling.

So...in short...stay tuned!

Sunday, August 12, 2012

Mirage

After an especially trying weekend, I sought what I refer to in my head as my “haven” –  propping myself up against pillows on my bed, in the bedroom farthest from the TV, the living room, the kitchen, and the noise Stephen generates constantly.  But, he found me, flopping onto the bed cross-wise, one babyish hand finding my foot and patting it in that instinctively sweet way of his.

He’s stretched out, jabbering away, his t-shirt too short (as most of them are now), and I can see the jagged pink stretch marks on his belly…ugly reminders of his poor diet, his huge pharmaceutically-induced appetite, his inability to understand limits.  Autism, the wild beast that invaded our lives a decade ago, persists in trying to tear us apart, and it has left its mark on my son’s skin as it tries to claw its way out.  This evil, wrong presence – a million miles away from the happy, feel-good kind of autism that has parents lauding their child’s “differences” and appreciating their “uniqueness” – has terrorized my family, and there’s no weapon that can be used to defend us.

We have bound ourselves together to fight it, but inch by inch it creeps in.  We are trapped, isolated, a bizarre island in a sea of unhappiness, and it hurts.  It’s lonely.  It’s impossible to understand unless you live a similar life, and there just aren’t many people who do. 

At this very moment, as I type, Stephen is back on the bed, his round, soft cheek resting against my arm.  He giggles.  “Band-itch,” he says.  I am silent, thinking.  “Band-itch, peeze.”  I have no idea what he’s saying.  My heart breaks for a child who can walk and eat and sleep, and in most other ways is unable to conduct his life as a human being…trying to talk, staring earnestly into his mother’s eyes as he sweetly says, again, “Band-itch, peeze.”  As I shrug and say, “Baby, I don’t know…” he once again gives up, not able to communicate, and so he retreats back into his mind, jabbering about Thomas or Percy or whatever.  I got lucky this time.  So many times this kind of non-communication results in screaming fits.  What a wilderness of confusion his brain must be.  It shatters me to imagine his bewilderment with the world.  I’ve been a soggy, crying mess over the last 12 hours.  Two more tears trace paths down my face, and Stephen reaches out a finger to catch a drop off my chin, and he wonderingly looks at it, then wipes his hand on his shirt.

The future scares me.  Stephen’s puberty looms like another monster, an unknown enemy lying in wait.  Our older son starts high school in a week – how is he doing, really?  He told his dad last night that “this stuff” does get to him, but he doesn’t show it.  He just goes downstairs and pounds on his drums.  Have I failed him?  Is he destined to run far from this home that I’ve tried in vain to make tolerable or even happy at times, taking memories of chaos and noise and pain?  It is more than I can bear.

For years, I have worn a silver band engraved with “HOPE” on my right hand.  I bought it at the first autism conference David and I attended.  Those snake oil salesmen/vendors are nothing if not purveyors of hope, mainly of the false variety.  Regardless, I have always gained a miniscule particle of strength when I’d glance at the ring on my finger.

Today I took that ring off.  Right now it hurts more than it helps, because hope seems elusive, mocking me as it swoops in only to disappear when I reach for it.  Oh, there are times when my eternal, cockeyed optimistic soul believes that happiness is possible: the scent of newly mown grass that transports me to childhood, Stephen’s wild dancing and laughing moments, Kerry’s enthusiasm over music, David’s constant ability to make me laugh till I cry, a perfect sentence in a book I love…

But my well of hope has run dry, for now.  I’ll find a way to replenish it, but right now it’s empty.  I’m afraid, I’m discouraged, I’m out of ideas.

Years ago Kerry gave me a necklace that has a charm on it: “#1 Mom.”  He honored me by considering me a great mom, but I have a hard time convincing myself of it during dark periods, like now.  Today I put my hope ring on that chain, and hung them both back on a hook.  In sight, not packed away, but not to be worn…not while the beast snarls at the door.  I’ll keep what’s precious out of harm’s way, with the vestiges of stubborn endurance I have left.  We may be hanging on by a thread, but in my heart I believe the thread is made of something just strong enough to withstand the attack.

Saturday, June 9, 2012

For Sissie

My sweet, loving, laughing aunt Joyce (“Sissie” to me and to many) died quite unexpectedly last night after a brief illness.  I was there, in the room, with a host of family members.  It was a heartrending yet precious thing to be there as Sissie quietly left this life.

I will miss her every day.

Even though I didn’t get to see her as often as I’d have liked, I did talk to her frequently, just to say hi.  She was always my consultant when I had a sticky cooking issue or question.  I’d call her up, tell her what was going on, and she always knew what to do, how to fix it.

She has been a constant fixture throughout my life.  She worked at the same university my mom did, so childhood summer days spent “working” with my mom always involved a trek across campus to visit Sissie.  I always felt so independent on those walks, and so comfortable visiting her office.  Sissie worked in the housing office of the university – she was famous amongst a certain group of “problem children” who were never happy with their dorm room assignments.  She ruled with an iron fist, and rightly so!  When David and I first began dating, he went with me to a cousin’s wedding.  It was his first time to meet many of my extended family.  He saw Sissie from a distance, stopped short and said…”Wait…she is your AUNT????”  Turns out he had met Sissie already, albeit in a very different context.  That always made Sissie smile when she would remember it in later years.  She knew David on sight, and immediately remembered who he had roomed with, in what dorm, and what trouble he and his roommates were. 

Above all, Sissie loved her family.  Her son, her daughter, her grandchildren, and great-grandchildren, her brothers and sisters, and all of us nieces and nephews. She loved unpretentiously and fully.  She adored my sons, always remembered their birthdays…Kerry and Stephen’s school pictures had a place of honor on her shelf, right alongside the photos of her grandkids and great-grandkids. 

She was generous with her resources in every possibly way. 

Sissie was the quintessential wonderful Southern cook.  Her turkey and dressing would’ve won any contest, and she made pans of it every Thanksgiving to share with anyone who just couldn’t get the knack she had of making that delicious dish (ahem).  Another specialty of hers was tiny, bite-sized lemon tarts – creamy filling inside homemade pastry tarts.  These always showed up at Christmas, and I have very fond memories of the HUNDREDS of tarts Sissie made for my wedding reception years ago.  I can picture her now in her kitchen: barefoot, hair a bit disheveled from the steaming pots on the stove, singing to herself…

Women across the centuries have been the lifeblood of the home, the caretaker, the nurse, the comforter, the provider of meals.  Today, and every day that I endeavor to become a more loving mother, daughter, cousin…every day that I look for the fun in life, that I try to laugh a little more…with every meal that I put together in my kitchen…I honor a most precious Southern lady who succeeded in these ways and countless others..

Mama and Dooley and all of your family miss you.  I love you always, Sis.

Thursday, June 7, 2012

Earth Fare, Desserts, and the Magic Chicken

I discovered that an Earth Fare store was opening in our area by accident.  I was looking up retailers for the amazing, wonderful Alabama's Organic Milk (buy it if you can find it…you will never switch back) and saw “Earth Fare – Hoover…coming soon.”  I had just seen this store mentioned on the 100 Days of Real Food blog and had filed it under “stores that we don’t have around here,” like Trader Joe’s.  So you can imagine my happiness to find an Earth Fare that opened May 30 in Hoover.  I joined their buyer’s club (free) and was able to print a coupon for a free whole chicken and a pint of fresh blueberries, to use if I spent at least $15.  That wasn’t hard to do, and I walked out of the store having spent about $60 but with a lot of good deals on things I would’ve bought anyway – bulk demerara sugar, organic roma tomatoes, my beloved Alabama milk, some Earth Fare brand organic ketchup, and quite a few other staples - plus a fresh chicken and some berries.  Free!

I vaguely recall trying to cook a whole chicken once, in our tiny apartment kitchen, and feeling totally overwhelmed with the task at hand.  So I was a bit nervous but had already decided to make the most of the freebie and cook it in a way that went right along with my real food commitment.  I used my slow cooker to make The Best Whole Chicken in a Crockpot.  I got it all set up before going out to run errands last week, and when I got home, the house smelled wonderful.  The chicken turned out perfect, and we had the larger breast meat portions that I “carved” (it’s a learning process) for dinner that night, the pan juices spooned over each slice.  I also made some quinoa with zucchini and artichoke hearts to go alongside.  So, that’s meal #1 from my Earth Fare free chicken.

I chopped up the chicken that we didn’t eat that I had “carved” (ahem) from the bird, and put it in the freezer to use for chicken enchiladas later this week.  So, there’s meal #2.

That night, I took the remaining…pieces…of the chicken – the bones and such – and put them and the onions that had cooked with the chicken back into the Crockpot.  I added a couple more onions, about 3 organic carrots, the rest of a package of celery, including the leaves, that I had in the refrigerator, one sprig each of my basil and rosemary plants growing on the deck, and covered all of that with water.

I turned the Crockpot on low and let it cook all night – almost 8 hours.

The gorgeous, rich scent literally woke me up the next morning…

Homemade chicken stock!  Nearly effortless and so rich and golden you wouldn’t believe it.

I got this idea from the 100 Days blog – and I didn’t have an appreciation for how simple it would be, and how gratifying it was to make homemade stock.

I got 9 cups of stock, total – packed up in 1 or 2 cup portions and put in the freezer.  Tonight we had vegetable soup made with the broth, and chicken enchiladas made from the rest of the chicken.

After I strained out the stock and removed the bones, I was left with very tasty vegetables and little bits of chicken.  I couldn’t just throw that out.  So, I chopped the veggies up in the food processor, added some water to a pot, and let it simmer.  I cooked some barley in another pot and added that.  Bingo.  Chicken barley vegetable soup that has supplied 4 lunches.  Meal #3.

So due to one free chicken, I got 3 meals (at least) and 9 cups of chicken stock for future recipes.  Not bad.

In the last week I’ve also made a bread pudding with whiskey sauce that was simply glorious.  It came from my old standby Betty Crocker cookbook, but I used whole grain raisin bread, real butter, organic eggs and cream, pure cane sugar and organic butter with the Jack Daniels for the sauce…and let me tell you that a tiny little demitasse-type dish of this pudding with a healthy dollop of whiskey sauce was just gorgeous and such a rich experience.  Sooooo much better than most desserts I’ve thrown together.  Again, there was a ritualistic aspect to serving these little portions, full of rich flavor and so satisfying.

I also made David a birthday cake with whole wheat flour, used coconut oil in place of vegetable oil, and made real chocolate buttercream frosting.  It was a huge hit – no one would’ve guessed it had wheat flour.  While I don’t plan on providing sweet desserts like this all the time, it was a delicious birthday cake, and it had none of the bad crap you get from boxed mixes and those little cans of frosting.  The cake recipe is here:  Whole Wheat Chocolate Cake and the icing one is here: Ghiradelli Buttercream.

I have lots more to share but I’ll stop there for now.  Happy eating.

Tuesday, June 5, 2012

Chilton County Peaches

My Earth Fare post is forthcoming…in the meantime:

Yesterday afternoon I had to run an errand, and on my way home I passed a little produce market that I’ve seen a hundred times.  I noticed a sign that wouldn’t have caught my attention 2 months ago.  Unless you’re a local Alabamian, this won’t mean anything to you – but the sign said “Chilton County Peaches.”  My car turned in to the parking lot as if under a spell and I made my way to the peaches sitting in their little baskets, soaking up the heat of the afternoon…the scent hanging in the air was sublime and I spent a lovely 5 minutes choosing just the right peaches.  The lady at the register sorted through them and declared two of them “too soft” and went to the back to get two better ones.  I love buying from small businesses like this.  Imagine caring about your customers enough to make sure that they are getting the best you have to offer.

When I got home, I added the peaches to my now-overflowing wooden fruit bowl that sits on the corner of the kitchen counter…there are onions hanging in a net bag, garlic and tomatoes, apples, bananas…  I couldn’t resist trying a peach, even though it was nearly suppertime.  I stood at my sink, and took a bite of the best tasting piece of fruit I’ve had lately.  I unashamedly licked my fingers, not wanting to miss even a tiny taste.  I started thinking about writing about eating that peach…and just as quickly I thought, “Who wants to read about you standing over the sink eating a peach?”  But that’s the thing, isn’t it?  I write because I have to write.  I love writing about what I’m doing, what I’m discovering, about the fact that I haven’t had a single Double Stuf Oreo in a month…and I don’t miss them.  Really!  Most of all, though, I feel like I’m ME when I write.  I honor my passions, my interests…the things I value when I take the time to write them down.

So, this morning, dear reader, I had the most delectable breakfast.  I sliced up a peach, poured a couple of tablespoons of organic cream into another bowl and frothed it up a bit with a fork, then…THEN, I drizzled that slightly thickened cream over the peach slices, the cream mingling with the peach juice.  I took a bite and the taste, the scent, the texture was unlike anything I’ve ever had.  I’ve always heard the phrase “peaches and cream” but never thought about actually eating it.  The velvety cream wrapped around those bright saffron slices of peach…it was spectacularly good.

This is a perfect example of how learning to eat real food has changed my life.  A month or so ago, I would’ve grabbed a Toaster Strudel or Pop-Tart, gulped it down with a huge glass of milk, barely tasting any of it.  Now?  Picking out peaches, taking them home, choosing one from my bowl, slicing it, preparing the cream…the whole process felt like a ritual, an homage to the amazing foods that are out there that I overlooked for so long.

Already, the thought of one of those “breakfast pastries” makes my stomach churn.  I can’t fully explain to you what a difference this new philosophy is making, not to mention that while I’m not counting calories, I’m willing to bet that this decadent breakfast would win out health-wise over any of that junk I used to put in my body.  To date, I’ve lost a little over 14 pounds eating cream and whole milk and rich cheese and real butter and fresh local produce.  I feel like I’m getting away with murder!

I hope you can enjoy some lazy summer mornings, delicious meals, and for the lucky few that can get them, some Chilton County peaches.

Friday, June 1, 2012

Burgers, Veggie Lasagna, and A Change of Appetite…

Last week I found a one pound package of grass fed beef on sale.  It was frozen, so I popped it in my deep freezer to save it for whatever idea might come up.  Since I was off work Monday for Memorial Day, I thought I’d fulfill my duty as an American and cook burgers.  I’ve been trying to use grass fed beef for recipes for several years now – not always successfully, but more often than not.

However…

In the past, to make the burgers extra yummy and flavorful, I’d pull out a packet of that staple of the Deep South cook – good old Lipton Onion Soup Mix.  One packet, a quarter cup of water, and 2 pounds of ground beef, and you’ve got yourself a tasty burger.



“Five Classic Recipes…Right on the Box” !

And then, inside the box: Onions, salt, corn starch, sugar, corn syrup solids, caramel color, hydrolyzed soy protein, partially hydrogenated soybean oil, yeast extract, monosodium glutamate, natural flavors, disodium inosinate and disodium guanylate.

Lots of winners there, including partially hydrogenated oil and MSG.

My mission was to concoct a “real food” equivalent to the soup mix.  I studied recipes and found that most of the “make your own mix” recipes included beef bouillon granules – try finding healthy “granules” of anything. I did find one recipe that was merely a mixture of spices, all of which I already owned except for one, so I bought some celery seed and went that route.  I used this version: Homemade Onion Soup Mix.  It looked really nice in the bowl – seeing exactly what I was going to be putting into our food made me feel good about what I’m doing.

Starting at 12 o’clock and working counterclockwise:
  • parsley
  • onion powder
  • celery seed
  • pepper
  • garlic powder
  • all surrounding the onion flakes
Isn’t that kind of pretty?  I thought so.  This recipe makes enough mix for 2 lbs. of beef.  Since I was only using 1 lb. I measured out half the spices – roughly 2 tablespoons.  I put the other 2 T. into a snack sized ziplock and will pull it out the next time we want burgers.

I quickly defrosted the beef (not in the microwave, but by putting the unopened package in a ziplock and running cold water over it and letting it sit in a bowl in the sink…change the water every 30 minutes and soon the meat will defrost evenly) and put it in a bowl.  I added my homemade spice mixture, one tablespoon of bread crumbs, and to add a little moisture, I put in about 1/3 c. beef stock.  I found this organic one on sale for $2.99 at Publix and will use the rest to cook some quinoa this week.  (Emeril’s brand.  I know.  I had to resist yelling “Bam!” every time I poured in stock.)


Oh, and I used a Sharpie to give myself a deadline for using the stock.   I need all the help I can get remembering things.

I mixed everything gently with a fork, just till it all came together, then cooked the burgers on my griddle pan.  I’ve been shying away from using my George Foreman grill lately – with all of the liquids/fats draining away, the meat sometimes ended up really dry.

The occasional pan-fried burger made from high quality beef isn’t going to hurt us, I figure.  I cooked them carefully, tilted the pan toward the end of cooking to let excess liquids drain, and those burgers turned out tender, juicy, and really flavorful.  We didn’t miss the Lipton soup mix, that’s for sure.  I’m sure these burgers would turn out great on the grill, if you enjoy cooking out.

Another dish that got a bit of a makeover recently – lasagna.  I’ve always done a pretty traditional meat/cheese/sauce/pasta combination.  I wanted to experiment with a meatless version.  I searched and looked at a lot of veggie lasagna recipes, and finally settled on this one: Vegetarian Lasagna.  If you click, you’ll see it has a “surprise” ingredient.  If you’re not a tofu fan (now stop…I’m not becoming a total hippie granola bar) then….keep reading.  The only time I’ve ever eaten tofu was in sweet and sour soup – thin little strips, no big deal.  The thought of a big block of the stuff in my lasagna, though?  I was less than enthused.  But I persevered.  I love roasted red peppers, so that ingredient won me over, and of course, those add a lot of flavor to this dish – and the tofu is crumbled and kneaded into the ricotta cheese mixture.  It gives it some thickness and some richness, and you’d never even know it was there.  I made up the whole amount but split it into two pans, one of which I popped into the freezer for a busy weeknight meal.  The lasagna was dense but not dry, and full of flavor.  Both Kerry and David enjoyed it and didn’t miss the meat at all.  Definitely worth a try if you like Italian food.

So, over the last couple of weeks, I have successfully added more vegetables to our meals, while simultaneously reducing the amount of red meat we’ve been eating.  We’re eating more fish as well.  I have found that, for the most part, meat doesn’t even sound that good to me.  Today we celebrated my dad’s 82nd birthday at Cracker Barrel, and I scoured the menu for whatever sounded good.  With my new way of eating, I planned to have a real “special occasion” meal if I wanted to – fried chicken or chicken ‘n dumplings or whatever I wanted…but I didn’t want any of those things.  I finally settled on a vegetable plate and took my time with the fresh corn, the okra, and the pinto beans.  The others at the table were eating dessert and I was still finishing my food.  I was so full I couldn’t even touch my cornbread or hashbrown casserole.  I find myself craving cool, light foods these days, more often than not.  Lunch has become a lighter meal – maybe a few good crackers, some creamy havarti or brie, and some fruit.  I recently bought some artichoke hearts, for pete’s sake.  What’s more, I even ATE AND ENJOYED THEM instead of leaving them in the pantry for years.  Who am I?!??!!!

Finally, while losing weight was not and is not my primary objective here, I couldn’t help noticing the difference in my face when I look in the mirror, and the loose-fitting clothing that used to be tight.  So, I stepped on the scale a few days ago.  From my highest point since pregnancy, I have lost twelve and a half pounds so far.

Not bad.  And I am eating the most delicious foods I’ve had in my life!  This is absolutely a joy and an adventure, and I’m so grateful to have such wonderful foods to choose from…  So, stay tuned, and enjoy your food!

Next time, I’ll be posting about my inaugural trip to our new Earth Fare store, as well as a really simple but delicious and elegant dessert I made recently.  A true Southern classic!

Wednesday, May 30, 2012

Tested

I’ve done a considerable amount of thinking over the last few days.  As much enjoyment and excitement as I feel about my quest to eat real foods…I don’t think I’ll change the name of this blog.

On that long-ago October night, when I was sleep deprived and up (again) with a 7 year old Stephen, when I thought maybe I’d start a blog, the Pink Floyd song that lends its name to this site drifted into my head with its perfect, delicate mix of despair and hope. I’ve always hoped to use these pages to share my honest and oftentimes gut wrenching feelings…to share my inside thoughts with an outside world.

In today’s cultural climate we’re inundated with images, sounds, advertisements, subliminal messages.  We communicate via computer or text message.  We are, as MIT professor Sherry Turkle's book states, Alone Together.  I’m almost as guilty as my teenage son of using these media to “connect” with other human beings.  A case in point: one of Kerry’s friends “texted” him to invite him to a movie.  Kerry is notoriously bad at checking his phone, so he missed out on the fun.  When I said, “I wonder why he didn’t just call our home number?” Kerry told me later that his friend “didn’t even think of that.”  We are alone, together!  The very words streaming from my fingers are destined to be published on the web…a desperate, even pitiable attempt to throw a lifeline out, to see if anyone is out there in a world that seems farther and farther away from my isolated little family unit.  This blog has always been about crying out, about seeking validation, even approval.  Every time I click “publish,” I wait anxiously to see if anyone notices, or better yet, comments.  For a minute or two, I feel…important.  Valued.  I matter.  What I say matters.

I do not mean to imply that over the years of this blog, the thoughts torn loose from a heart sore and heavy with pain are somehow untrue, or embellished in any way…or God forbid a raw bid for pity.  No, like any card-carrying introvert, I simply find it much easier to express myself “on paper.”  But, would I find it nearly excruciating to sit across from any of my readers and express these thoughts?  Undoubtedly I would.  Would I fidget and stammer over my words?  Would I say the same things I say here?  Am I wearing the inside out?  Why is it so hard to look each other in the eye?  I can’t blame it all on my Myers-Briggs personality type. Why do we hide behind the very devices that purport to encourage a sense of community?

For years I’ve been a member of an online bulletin board dedicated to the band Rush.  At first it didn’t really occur to me that it might be important to avoid building an internet persona – a character that I could customize to be whomever I wanted her to be.  Isn’t the internet the perfect playground for branching out, being a little different, creating the person you wish you were?  It can be, and for many people, that’s almost all that it is.  But when I found myself carefully crafting sentences, trying to be extra clever, or meticulously searching for just the right picture of me or my kids (!) to really drive home what a supercool person I was…it hit me.  To borrow from Turkle again: I was experiencing what is called “presentation anxiety” over how best to demonstrate to the internet the image I was unconsciously creating.  It’s like a mask we wear…and as long as we never meet or connect in the outside world, the illusion stays intact, and we pretend to ourselves that we’re involved in each other’s lives.  Does this encourage true community? 

Luckily, early in my years of making “internet friends,” I was able to meet some of them in person – and I knew I wanted to be the same person online or in the flesh.  My point is that the temptation is there, to make yourself seem different in some way…because it’s safe when you pretend to interact but in reality hold others at arm’s length.  I hope the very dear friends to whom I’m referring would agree that we are truly friends in every sense of the word, and I’m grateful for that.  This isn’t just about long-distance friends you’re not likely to see very often, though.  Ever seen someone you know in the store and gone out of your way NOT to run into them?  Be honest…

I must come clean about a few things, while I’m being so transparent – these confessions are part of my self-induced therapy.  I can no longer moan and groan to myself in my journal about the extra weight…and then eat so many Double-Stuf Oreos I lose count.  I can’t complain about feeling friendless when I grab my phone to text someone (keeping that safe buffer zone in place) instead of calling and hearing their voice.  I can’t whine about being miserable at work when I know in my heart I haven’t given it my all each day.  I can’t look myself in the eye in the mirror, pitying myself as a poor dear who has SO much on her shoulders, and then do nothing to take care of myself in the way that I deserve.

I’ve come to the conclusion that being honest on the internet is a true test of one’s integrity and sense of self, regardless of whether you ever come face to face with your target audience, be it friends at a Rush concert, or the neighbor down the street that you’ve “friended” on Facebook but never walk down the street to, you know…talk to

As I continue to strive toward a better life, I want to commit to myself that I will also make it a more honest life.  I will tell the truth about what I’m feeling.  I will tell the truth about what I’m eating, about how I’m caring for myself.  I will not craft an image.  Like other writers before me, I long to have you, the reader, know me.  I want to tell you on these pages the thoughts that my voice could never fully express.  But on the happy occasion that I do see one of you face to face…I don’t want you to wonder what happened to that person who wrote all that stuff on the internet about autism and real food and finding meaning in the life you lead.

So this blog will continue to be my venting spot, my recipe book, my dream repository – with a renewed sense of truth running throughout, a thread stringing together the beads of my days and my years.
I’m wearing the inside out.

Monday, May 28, 2012

Summer

Stephen is in his room squealing/shrieking at the pile of videotapes and DVD cases that he feels must be strewn across his floor.  The door’s closed and still, every sound makes my bones hurt.  Summer has only just begun and already I wish I could disappear.

It’s not a coincidence that my prolific writing output stopped right about when school ended.  God, I hate this time of year!  Other families relax into the nothingness, glorying (as they should) in the freedom, the vacations, the trips to the lake.  I crumble into misery, along with my family.  Stephen’s behaviors multiply in intensity.  The easygoing guy of August through May disappears, and along with him any real sense of family harmony.  God, I hate it SO MUCH.  I can’t get a straight answer from anyone about his summer services, and he’s too old or too affected by autism to go to any of the day camps I found.  Unbelievable how families like mine are just dropped like hot potatoes when the school year ends.  And they extended summer, which is clearly an attempt to push me over the edge.  School was going to start August 9.  Now it’s August 20.  Just shoot me.

I have been doing very well with feeding myself and my family with real foods and trying new recipes.  Maybe I’ll get a chance to share more foodie stuff later.  I hope so – those plans and possibilities have been a lot of fun for me.  I’ve found something I’m really interested in, that I enjoy thinking about.

Hopefully I can get back to something fun soon.  Right now I have to go see what I can do to help my son deal with the misery of summer.

Edit to add this...here is what we have to wade through to walk into Stephen's room lately.  It ain't easy.

Thursday, May 24, 2012

What we’re eating…

I’m going to run out of titles soon.  How many ways can you say “here’s the food we’re consuming”?  “Here’s the Grub ”?  Umm…no.  “Fancy Fixins’”?  Ewww.  “Food: the Sequel”?

Let’s see.  Last night we had what I thought was a very tasty and satisfying meal.  And, no meat was involved!  I’ve found that buying good quality meats and poultry is what drives up my grocery bill.  So any time I can do a meatless meal that is still hearty and delicious, that’s a great thing.

I cooked Cheesy Vegetable Chowder and Ultimate Cheddar Bay Biscuits (click the names to see the recipes).  The chowder was soooo creamy and good.  It may be my new favorite soup.  I diced the potatoes (Yukon golds, 5 lb. at Organic Harvest on sale, $2.99), the celery, onion and carrots the night before, and stored them in water in the refrigerator overnight.  Once the vegetables were simmering, I made the cheese sauce.  Using whole milk to make the roux really added so much creaminess to the soup.

 

 

Roux thickening on the left, veggies simmering on the right

 

 

 

After the potatoes were tender, but not mushy, the cheese sauce was mixed in.

At first I thought the chowder was a bit thin, but after settling for just a few minutes, it was velvety and just the perfect consistency.

 

Finished product:

The Cheddar Bay Biscuits were also a hit.  Next time I’ll use salted butter (I always keep unsalted on hand because I mostly use it for baking) and I’ll watch to make sure the edges don’t overcook.  This time they went just a minute or two too long.  These are like the biscuits that Red Lobster serves, and I’ve traditionally used this mix to make them:

Oh, they tasted good, these little Betty Crocker biscuits.  Kerry would get all excited when I’d say we were having them.

And just look at all we were getting for the low, low price of $1.49:

Enriched Flour Bleached (Wheat Flour, Niacin, Iron, Thiamin Mononitrate, Riboflavin, Folic Acid), Partially Hydrogenated Soybean And/Or Cottonseed Oil, Vegetable Oil (Palm, Palm Kernel), Leavening (Baking Soda, Sodium Aluminum Phosphate, Monocalcium Phosphate), Corn Syrup Solids, Salt, Dextrose, Garlic, Buttermilk Powder, Modified Corn Starch, Whey, Dried Cheddar Cheese (Milk, Cheese Cultures, Salt, Enzymes), Colored With (Artificial Color, Yellows 5&6), Whey Protein Concentrate, Maltodextrin, Reduced Lactose Whey, Citric Acid, Natural Flavor, Disodium Phosphate, Sugar, Garlic Powder, Onion Powder, Hydrolyzed Soy Protein, Disodium Guanylate, Disodium Inosinate. Contains Wheat, Milk And Soy Ingredients.

Gulp.

Now, I’d love to show you my beautiful pan of made-from-scratch Cheddar Bay Biscuits, made with organic wheat flour, and natural ingredients.

 

Except I forgot to take a picture of them.

 

They DID look like these, and they were savory and moist and full of flavor. 

I had one small biscuit and a couple ladles full of soup, and enjoyed both tremendously, one smooth and delicious bite at a time.  The biscuits are very filling and buttery and kind of heavy (as they should be in this case) so it’s not likely we’ll have these often, but when we do, we shall enjoy the heck out of ‘em.

Which is the whole point!

Otherwise, what else is going on?  Well, I visited Whole Foods yesterday.  Again. Second time this week.  I just love being there, surrounded by all the beautiful food.  I went to get just an item or two…and you know how that goes.  I found a nice pinot noir on sale, so since that’s part of the Mediterranean way that was really a necessity.  I got some beautiful, soft, non-grainy garlic powder that smelled SO GOOD…enough to fill my spice jar at home, $1.29.  I also bought a basil plant and a rosemary plant ($2.99 each) and put them in a container on my deck.  I’m planning to do a little container gardening – maybe a tomato plant, some lettuces…who knows?  I also got a fresh organic demi-baguette, flavored with rosemary, $1.39, and some heirloom tomato salsa, which was my splurge item…a very small container was $3.50, but the guy who rang up my groceries was raving about it, so I think that’ll be a nice treat, to savor….perhaps I’ll slice up that baguette, toast it, add some salsa, and drizzle with olive oil.  Now my mouth is watering!

So…even though our most dreaded time of the year is here (summer…which should be growled through clenched teeth) I am doing my best to stay positive and enjoy the life that’s opening in front of me.  Mine!

I hope you’re enjoying the ideas and recipes I’m collecting.  I hope, as I learn, that maybe you’ll find something new to try – and also, since I’m trying to include prices when I can remember them, you’ll see that you CAN eat better, even with a budget.  When I found those Yukon potatoes on sale, I snapped them up – THEN found a recipe to use them with…sometimes you have to think on your feet.

A quick “programming” note: I’m considering changing the name of my blog to more accurately reflect what’s happening here.  To borrow a phrase from the same Floyd song I’m using now…what do you think of “Coming Back to Life”?  Let me know in comments.  Thanks for reading and, happy eating!

Wednesday, May 23, 2012

On the menu

So…I’m so excited about the foods and combinations of foods I’m discovering that I could probably blog daily.

I won’t subject you to that.

I did want to post an update on Operation Creamer Concoction.  Last night I reheated the cream/milk/syrup/vanilla mixture and added in about 1/4 c. raw sugar.  I thought a little sweetness might improve matters.  And, it did…but I didn’t get that “ah-ha” moment I want.  The search continues…

I had some really good Kashi blueberry waffles this morning, with some maple syrup.  Having occasionally eaten waffles or pancakes with good old Log Cabin “syrup,” I am absolutely delighted with the purer taste and the thinner texture of real maple syrup.  You don’t need nearly as much, the flavor is intense, and it soaks in nicely, flavoring every bite.  The hilarious thing about Log Cabin is this - take a look at the label and see what jumps out at you:

See how proudly it proclaims “NOW! NO HIGH FRUCTOSE CORN SYRUP”?

Well, good on ya’, Log Cabin!  Way to provide a healthy syrupy substance!
Except…
INGREDIENTS: Corn Syrup, Sugar Liquid (Sugar Natural, Water), Water, Salt, Flavor(s) Natural & Artificial (Lactic Acid), Cellulose Gum, Preservative (Sorbic Acid, Sodium Benzoate), Sodium Hexametaphosphate, Caramel Color, Phosphoric Acid
That’s right.  None of that nasty high fructose corn syrup.  Just…low fructose corn syrup?  And, I’m sorry, but… “hexametaphosphate”?  How is that not a drain cleaner or windshield de-icer?  Regardless of what it is, it sounds frightening.

I looked it up.  Blech.  Google it if you want to know…

I got hungry mid-morning and had some sesame crackers, a little cube of Alouette soft cheese, and half an apple.  A good combination, I think.  It tasted really good, regardless.  And I keep saying to myself…why did I think trying to eat better food would be so hard, that I would feel so DEPRIVED?

Tonight we’re having a vegetable cheese chowder and some garlic biscuits…both from scratch.  I’ll post a review of both recipes soon.

Happy eating!

Tuesday, May 22, 2012

What worked/what didn’t

So, last night’s bean burritos?  Fantastic.  The beans were full of flavor from the garlic that had slow-cooked along with the beans all day, and the chipotle chili powder.  This is a bit smokier in taste than “regular” chili powder and I’m glad I used it in these beans.  We also had some basmati rice cooked in vegetable broth (I got a four-pack of 1-cup cartons of Pacific Foods Organic at Whole Foods for about 3 bucks), some cumin and a chopped jalapeno.  Note: I washed my hands SIX times after chopping the jalapeno.  Six.  This morning if I touched my finger to my tongue, it still burned.  Anyway, I also roasted and chopped a medium sized poblano pepper that went really nicely in the burritos.  Lastly, some regular (not light) sour cream and some white cheddar cheese – very sharp and it only took a sprinkling to add to the creaminess.  The guys added some ground beef (grassfed – one pound at Publix – $7.99…more on this in a minute) that I browned, drained, and added back to the pan with some of the homemade taco seasoning I mixed up over the weekend because I had the spices on hand.  Delicious and no MSG!  I was able to make enough seasoning for at least three total meals.  Recipe here: Homemade taco seasoning.  I tripled that recipe and stored the mix in a small airtight container.

So the beans were absolutely a success, and we’ll have this meal again in the near future.

Now, on to an item that I use daily and really feel I can’t be without.  Coffee creamer.  I love good, strong coffee liberally laced with French Vanilla creamer, like this International Delight stuff. Not so bad, right?  The problem comes when you study the label.

Non-Dairy Product Ingredients: Water, Sugar, Palm Oil, Corn Syrup, Contains 2% Or Less Of The Following: Sodium Caseinate* (A Milk Derivative), Dipotassium Phosphate, Natural And Artificial Flavors, Mono And Diglycerides, Sodium Stearoyl Lactylate, Carrageenan, Salt. *Sodium Caseinate Is Not A Source Of Lactose.

Yum!  Have you had YOUR sodium steroyl lactylate today?  And don’t you wonder what “natural and artificial flavors” really are?  I can think of a lot of “natural” substances that I don’t want in my food.

So I decided I’d study and concoct my own creamer.  Last night I simmered a cup of cream, a cup of whole milk (both organic), 4 tablespoons of pure maple syrup, and a tablespoon of pure vanilla extract (note: next time I plan to use vanilla beans).  It smelled so great bubbling away on the stove.  This morning I eagerly poured a healthy dollop into my waiting cup…but no.  It was not to be.  It wasn’t BAD, but it wasn’t what I wanted, either.  I’m going to keep researching and tweaking the recipe.  Or, my tastes will change and I’ll be happy with just real cream.  Either way, I’m done buying this junk from the store.

Today David and I ate lunch at Organic Harvest, which is a great little store.  Link here: Organic Harvest Market and Café.  We both had sandwiches – he had a chicken pesto on whole wheat, I had a roast chicken with tomatoes and feta and a spicy sauce.  Very very good.  Then we did a bit of shopping and found some good deals.

We got a gallon of organic milk from Alabama cows that eat grass.  And at $6.89/gal. it’s cheaper than the milk we buy at Publix (which works out to over $8/gal).102_1110

We also found another one pound package of grassfed beef, on sale for $7.99.102_1111

Okay, about this meat: yes, it’s expensive.  But I feel strongly about buying this for a couple of reasons.  I need to know, to the farthest extent possible, that the animals providing food for me lived a decent life, eating what they were intended to eat.  Also, my plan is to cut way down on red meat consumption (especially ground meat), to certainly no more often than once per week – and then less frequently as I add other recipes to my collection.  So I can afford to buy the better quality meat since I won’t be serving it very often.

We bought two boxes of cereal, both Cascadian Farms brand. Neither was over $3.00/box, and one had a coupon on it for a dollar off two boxes.  Publix would have a hard time beating that price.  And finally, we picked up a couple of pears, a couple of apples, some lemons…and a little over a pound of demerara sugar, a natural brown sugar, for my iced tea experiments.  I want to cut out refined, processed white sugar, and I use the overwhelming majority of that in sweet tea, which I do not want to give up.  I drink one glass per night, shot through with the juice from a big lemon wedge.  So, I’ll try to improve upon it.

More and more, this whole concept clicks with me.  Instead of spending my precious money on a bunch of junk that sits in my stomach like a rock, I’ll spend it on higher quality real food that is full of flavor – so full of flavor that I want to enjoy every bite.  And I’m taking fewer bites now – significantly fewer.  The pants I put on today buttoned easily, with room to spare.  A month ago I had to work to make those fasteners meet.

That’s it for now.  I’ll keep updating here as I make new discoveries.

Monday, May 21, 2012

In the beginning

So, I thought I’d start by just going over a few of the initial changes I’ve made in my kitchen.

Once I finally wrapped my head around the whole “good fats in moderation are good for you” concept, the first thing I did was buy whole milk instead of 2%.  I can hear some of you gasping.  I felt completely BAD buying those first couple of containers, like a food cop was going to jump out of the dairy case and cuff me for trying to clog my family’s arteries.  Obviously, some folks don’t do milk or dairy, and that’s great, but in my family we do like milk, so…why whole milk?  Well, it tastes really good.  The idea behind this whole food concept is to up the quality of your food, enjoy it slowly and thoroughly, and you eat less.  It’s true.

So change #1: whole milk.
I’ve been buying organic milk for several years now, either this brand or Horizon.  But I always bought 2%, occasionally forcing myself to buy skim for my own consumption.  Blech.

Last night before bed my stomach was a bit empty.  I poured maybe 4 ounces of milk into my Bama jelly glass and sipped it over the next 15 minutes.  It tasted amazingly good, and it filled my stomach just enough to let me go to sleep feeling comfortable.

I suppose the next change is really more of a series of smaller changes.  I took a few of the recipes I found in the books I’ve mentioned (French Woman Don’t Get Fat, The Fat Fallacy) and tried them.  We had some pasta with leeks and parmesan cheese, drizzled with plenty of olive oil.  Delicious!  And along with that I prepared some pork loin chops.  I still have some work to do if we want to have those again because to say they were a bit tough is being generous.  But, we also had another pasta dish another day, this one with lots of zucchini and diced tomatoes, again with a good amount of olive oil and some basil.  We had some whole wheat bakery bread toasted with a slathering of the new butter I’m buying: Kerrygold Pure Irish Butter.  Ingredient list? “Pasteurized Cream, Salt.”  Yes, it has to be left out for a few minutes to be truly spreadable.  This is not hard to accomplish.  You set it out, you do some of the other stuff that needs doing, and when you check it again, it’s ready.  It is a beautiful creamy yellow and tastes so good.  It even says “milk from grassfed cows” on the package.  Yes!  That’s exactly the kind of REAL FOOD I’m looking for…

So change #2: try new recipes that are heavy on the vegetables, and don’t skimp on the good fats to increase their palatability.  (Just learned that new word from yet ANOTHER new book: Low-Fat Lies, High-Fat Fraud).  Tonight we’re having bean burritos.  In the past, when we wanted burritos, I’d buy a couple of cans of store beans, plop ‘em in a saucepan, and voila!  But today, I put a bag of rinsed and sorted pintos in the crockpot with a good amount of salted water (and I used coarse sea salt), two whole garlic cloves, a tablespoon or so of chipotle chili powder, about a teaspoon of cumin, and some bay leaves.  When I get home I expect them to be tender and ready to eat along with some monterey jack cheese that I’ll grate right before we eat.  We’ll have some of the fresh salsa that Publix sells in the deli (all natural, lots of veggies, no weird ingredients). I’ll let you know how they turn out.

The last change that I’ll list for today is more of a behavior than a food choice, per se.  I am slowly learning to savor the food I eat.  It took me by surprise when I started consciously putting down my fork between bites – because I realized that I usually shove food in like I’m being timed.  Also, I’m simply chewing my food.  Tasting it.  Enjoying it.  I’m not saying I’m trying to chew a certain number of times, but I’m actually using my teeth, consciously noticing the flavors and textures.  Another surprise: when I took note not to put more food in my mouth while there was still the bite I had just taken in there.  Seems crazy, I know, but when I began to pay attention, I came to see that I was eating too fast and not even coming close to appreciating what I’m putting into my body.

Change #3: slow down and savor it.

As far as finding some substitutes for the store bought things we’ve been buying for years, I have two things to share today.  Stephen loves Chunky Chips Ahoy cookies.  Kerry does too.  I’ve been known to indulge, as has David.  So, I figured I’d find the best chocolate chip cookie recipe I could and make it with the best ingredients I could afford.  So, I made these: Whole Wheat Chocolate Chip Cookies from the wonderful blog 100 Days of Real Food.  I recommend the recipe heartily.  Next time I’ll be doubling it so that we have a treat that isn’t packed with chemicals.cookies smallI used organic whole wheat pastry flour, good unsalted butter, and pure vanilla extract.  I used Nestle semi-sweet morsels because I had them on hand already.  And these turned out beautifully!  David and Kerry thought they were great.  The only drawback was that when Stephen asked for “Chis Ahoy” and I smiled brightly and brought over one of these beauties, he picked one up, sniffed it delicately, and said, “No.  Chis Ahoy peas.”  Ah well.

The other new recipe I worked on this week was a homemade granola.  Since I’ve been eating more yogurt (whole milk with cream top) I remembered how good granola goes with yogurt.  So I studied some recipes and kind of cobbled together my own.  To make about 4 1/2 cups total, I used 1 1/2 cups of rolled oats, 1 cup of sliced almonds, 1 cup of unsweetened shredded coconut, a 1/2 cup of walnuts, about 1/4 cup each of flax seed and sunflower seeds, a scant 1/8 cup of brown sugar, 1/4 cup pure maple syrup, a drizzle of honey, and about 1/8 cup of coconut oil, warmed slightly to liquefy.  I mixed all that together, spread it on a foil-lined cookie sheet, and baked it for 1 hour, 15 minutes, stirring every 15 minutes so it browned evenly.  The house began to smell SO GOOD after about 30 minutes.  The end product was golden, crispy, and smelled delicious.

I tried about 1/2 a cup of this for breakfast, with a generous amount of whole milk.  And let me tell you…it beat any cereal I’ve tried.  It was so very good!

Well, this has grown very long.  I guess I’m still pretty excited.  I’ve always loved to cook and this feels like such an adventure.  Thanks for coming along!  More to come!

Sunday, May 20, 2012

The weight of the world…

It’s on my shoulders.

And by “weight” I mean literal pounds.  While at times I’ve certainly felt the figurative weight of the world (stress, worries, more stress) from time to time, for the last few weeks I’ve become very interested in the way people eat.  Most specifically the way my family eats.

This interest began years ago when I ran across a book called French Women Don’t Get Fat by Mireille Guillano.  It’s a native Frenchwoman’s take on the so-called “French Paradox.”  The media has predictably taken this idea and spouted such nonsense as “The French Paradox is a myth,” or “So these people eat ALL THE BUTTER and croissants and red wine as they want and don’t get fat?  Sure they do.”  Well, that’s not the paradox at all.  Traditional French eating is about celebration, about savoring the BEST food you can afford – slowly, and not stuffing one’s face with a bunch of chemical compounds masquerading as food.

And these mysterious food-like products are what many Americans typically ingest.  Go to the grocery store and take note of all the “healthy” foods you see: low-fat, fat-free, high protein, sugar-free.  Then look at the list of ingredients.  Chances are it’s a paragraph that’s chock full of words requiring a consultation with chemistry textbooks.

I’m about to finish another book called The Fat Fallacy that examines the “healthy” food-like substances that Americans have consumed in ever-increasing quantities in the last 30 years, all the while the obesity rates in the U. S. climb steadily upward.  The author, Dr. Will Clower, is a neurophysiologist (and a native Alabamian) who spent two years living and working in France – and who came home healthier and lighter (as did his family) than when they left America…all from eating real food: whole milk instead of watery skim, cream instead of low-fat Cool Whip, fresh vegetables instead of canned everything…

So, my personal goal is to reduce and eventually eliminate non-foods, while increasing our consumption of real, honest, and hopefully local foods.  To quote Michael Pollan (The Omnivore’s Dilemma): “Eat food. Not too much. Mostly plants.”  It just makes sense.  Is it going to be easy?  I can readily admit that it is not.  I spent nearly double my normal amount of time (but not double the money, which is interesting) at Publix recently, reading package labels and searching for the best products I could find.  It took me a full 10 minutes to find a box of crackers to go with my organic hummus (same price as the regular) that had fewer than 25 ingredients.  I hope to be able to find better food not only at my normal store, but discover other sources along the way.  The little Organic Harvest store in Hoover, even Whole Foods (if I’m selective).  The point is – there IS better food out there, and I’m going to find it without going bankrupt.

I plan to take this blog in a decidedly different direction, focusing on my “real food” goals and discoveries.  While I have grown tired of repeating myself about the problems that autism presents, you will still find mentions of autism here – because how could I not talk about the elephant in the room?  And the greatest challenge by FAR is going to be trying (and perhaps failing) to find healthier alternatives for Stephen’s extremely limited selection of menu items.

I’ve already tried a few new recipes and ideas, and soon I’ll share those, with some reviews and pictures of the finished products.  My goal is to eat BETTER foods – not to be a vegetarian, not to give up sugar or sweets completely, but to eat whole foods along with occasional treats that also happen to be real foods…to savor my food, to eat wonderful things that are good for me, and to stop when I’m full.

Today, we started watching the HBO documentary “The Weight of the Nation.”  Very eye-opening.  I wish every Alabamian could watch it.  Or, would watch it.  It has reinforced my resolve to just do BETTER.

I’m excited about this.  It feels good to do something so positive.

Tuesday, February 28, 2012

Truisms: A Reluctant Homage

In general, I do my best to avoid the overused, banal phrases that, to me, signal mental laziness and a poor vocabulary.  However it pains me to admit it, though, some clichés are just spot-on.

“Sometimes we don’t appreciate something fully until we think there’s a chance we might lose it.”

Ugh.  So trite, so hum-drum, so…absolutely true.

A routine test turns up what is 99.9% likely to be nothing, but until you know it’s nothing, you worry.    Suddenly life is so heartrendingly precious you can hardly stand the intensity of your feelings.  All of the annoyances, the petty problems, the minor things are so very unimportant that you can’t believe you ever gave them a second thought.  Even having a severely disabled child and a host of other problems to deal with on a daily basis seems like a walk in the park.  The mere mention of a problem that might affect the quality of that life – or at the very worst, take that life away – and you swear you will never, ever NOT appreciate what you have.

downsize-48-1If forced to look life and its gloriousness and variety and wonder and problems and uncertainties – and its finite nature – squarely head on, one would be foolish indeed not to take that opportunity to realize that, yes, each day is a gift, that we should never waste a day in pointless anger, that nothing is as important as loving and being loved.  Having one’s eyes opened to the beauty of every day is never a bad thing.

For this life, I am grateful.  For the people who love me, who accept my love, who bring me laughter and joy and things to think about and do, I am grateful.  For the sons of my heart, who grew within me and who carry a piece of me with them, I am forever grateful.

Today life is crystalline, bright, perfect and full.  That is enough.

Wednesday, February 15, 2012

February 15, 2012

102_1067

Dream, my little love.

Dream of trains that talk

of bears that eat honey and sing songs

of blue puppies, of paw prints

of every precious thing a childhood can hold.

Laugh, my little love.

Toss aside the standards of the world

for they matter so little – your world is your own…

Your happiness is the purest expression of joy that I have ever known.

Rest, my little love.

You are safe here.

You are my baby, born into a world that would not understand,

entrusted to me

for always.

We love you with depth unimaginable.

We protect you with every fiber of our being.

We celebrate you today, the day you arrived

and changed our lives for good,

for not-always-so-good,

forever.

Friday, February 3, 2012

Pride of purpose

Stephen will be 12 soon – in 13 days to be exact – and that will mean that we’ve known he has autism for almost a decade.  Most years I’ve done a post to commemorate his birthday, and maybe I’ll still do that, but I felt inspired to get some thoughts out today.

Autism is still a horrible, frightening, frustrating disease, disorder, whatever.  There are times when it breaks my heart and makes me feel hopeless…but not nearly as frequently as in the past.  And, honestly, part of the reason is that I’m finally on a good medication that keeps me from having total freakouts on a daily basis…but there is another element.  Stephen tries harder every day to learn useful words.  I’ve also found him on more than one occasion lately doing his own Google searches – holding a video in one sweet, soft, babyish hand while he diligently types the name of the video with the other one.  He used to always come and get one of us to do it for him.

So even with a child this affected, time brings improvements…glacially slowly, perhaps, but the overall trend is positive.

Something else has been creeping into my consciousness recently.  A perspective change of sorts…having a child so very dependent upon you for every need can (and does) often feel like an overwhelming burden.  It’s a hard life, nearly devoid of spontaneity and spur of the moment events…but what I’ve realized is that there is a graceful dignity that can imbue nearly every aspect of this life.  We are Stephen’s caretakers.  We take care of a soul who, without a caring network of family and teachers and friends, would be utterly lost.  There is a sense of pride in keeping him neat and clean and as well-fed as possible.  There is a peaceful feeling that comes with knowing that his hair smells of shampoo, that his clothes are clean, soft, and comfortable, that his socks are straight on his feet so the seams won’t press against his toes…  He can’t tell us when small things are uncomfortable or irritating…and I’ve found honor and purpose in caring for my son…in making him smile, in hearing his laughter when his daddy blows bubbles while Stephen’s in the tub, in seeing his big brother engage him and tickle him till he laughs that precious laugh, in seeing his obvious delight when one of us understands what he’s saying.

We could do our “duty” and make sure he is appropriately fed, clothed, and sheltered.  But there IS joy to be found in trying to understand him – to decipher the problems, to try to find solutions, and yes, to honor this little human person, to give as much scope as possible to a life limited by a cruel disorder.  I have always known that his soul shines, his innocence untarnished…to find deeper truths in this life of ours is a blessing that I embrace thankfully.

Friday, January 20, 2012

YouTube Therapy

David pointed out to me this morning that I haven’t written in a long time…also, that I tend to come to this blog as a last resort, most often when I’m fed up, in pain, mad, or in despair.

Guilty.

My writing seems to flow most easily from a place of pain.  I’m not sure what that says about me.  I’ve always heard that to be an artist, one has to have suffered.  It seems rather fancy and pretentious to consider myself an “artist,” but since art is about creating, and I’ve created this blog…I’ll let it stand.  So perhaps I’ve just taken that suffering thing too seriously.

Regardless, I want to build on a former post about Thomas and Stephen’s self-designed speech therapy.  Stephen continues to love love LOVE watching various videos on YouTube.  Like some autistic children David read about, Stephen doesn’t seem to be able to watch and listen simultaneously – it’s just too much to process.  So, with much repetition, he will watch a video segment, then turn his head away, cocking his ear toward the speaker and listen.  Watch, then listen.  Watch, then listen.  It can get annoying, but when you realize that he’s trying to learn, it’s a bit easier to stand it.  After watching/listening, he’ll try to say whatever’s being said, or sing the song being played.  It’s really precious to see.

We’ve continued to notice that he is also using the phrases appropriately in various situations during his day.  “Whatever is HAPPENING?” is a popular one when he’s, well, wondering what is happening.  We still hear “I can’t stop! Help! Help!” or “Oh, no, I’m in trouble!” when there’s a crisis.  And this morning, a sleepy Stephen who wasn’t ready to get dressed for school declared: “Of all the beastly luck!  Confound that ridiculous Colonel Hathi.”  (Stephen is Shere Khan the tiger and I am Colonel Hathi the elephant in this scenario. That’s from “The Jungle Book,” for the uninitiated.)

It is no less than astounding to see this boy, so trapped and encumbered by autism, continue to find his own way to communicate.  He is still a delight and a joy when he is happy – dancing through our lives with his smiles and belly laughs. 

Overall, things at our house are, dare I say it, smooth at the moment.  David, Kerry and I have settled into the relative peace, and as a team we are learning more about riding the waves of Stephen’s ups and downs.  It helps to have each other to lean on.  Kerry is as laid back as ever, calm and unruffled.  David has become rather masterful at figuring out the reasons behind some of Stephen’s meltdowns.  And thanks to my doctor’s help, I seem to have found a good anti-anxiety medicine, and I feel stronger and more capable of weathering those storms.

Thanks to David for giving me the nudge to write this morning.  It’s good to acknowledge the bright moments, and I’ve neglected to do that at times.  So, we will keep taking each day as it comes, knowing that we really can handle whatever happens.